Today Wednesday the 28th of May is World MS Day.  To me it is a day to celebrate the fact that I refuse to let MS dictate how I live my life.  It is also a day to bring about awareness for the millions of people around the world living with MS.

A number of months ago I was asked to take part in a project call “Seeing MS”.  It was a project to bring the hidden symptoms of MS to the world and make them visible through photos.   9 people living with MS were teamed with 9 photographers and symptoms such as Balance, Dizziness, Pain, Spasticity, Fatigue, Brain Fog, Numbness, Hot and Cold and Blurred Vision.

My symptom was Balance…but how do you photograph balance?  I was teamed up with a photographer by the name of Andreas Smetana.  Andreas is based in Sydney and with me in Melbourne we weren’t actually able to meet in person.  We spoke by phone for about an hour and then had a Skype call.  But I found it very difficult to describe exactly what goes through my head when I loose my balance.  It was a tough ask for him to come up with an idea for a picture but a couple of months after speaking with him I was asked to attend a factory in Prahran for an unveiling of “My” photo.

I was videotaped as I walked around the corner to view the photo.  It was 8 metres long and I was stunned, actually almost speechless, as he had nailed it!  Through an hour conversation, Andreas was able to depict exactly what goes on in my head and what I “see” when I loose my balance.  I had no idea how he was able to do this but was amazing!

seeingms balance

My Balance photo

All the photos are absolutely amazing and even better is that there is an App which you can download, take a photo and superimpose any of the symptoms on your own photo.  It truly is educational and will allow not only family and friends to understand the hidden symptoms but may even be used by employers to truly understand.

This project wouldn’t have been possible without the assistance of a lot of people and businesses.  Grey Melbourne, the advertising agency who have put this together have been amazing,  as well as Cannon who printed the photos, Sun Studios who provided the space for the launch and the numerous other companies who have helped to make this project come to life.

To all the photographers who gave of their time and the 8 other people with MS who have been brave enough to take part to help make a difference, thank you.  If we didn’t have people like this taking part we would never be able to educate the world!  I was truley inspired by this project and hopefully these photos will take undertanding to a whole new level.

To view the entire project go to




About the author : CarolC


  1. Marjorie Jenkins 28/05/2014 at 8:59 pm - Reply

    You amaze me, my dear Carol.
    Everyone should be lucky to have your outlook on life, no matter what they are dealt.
    Many can not see a good side to an adversity. Thank you for being part of my life.
    You keep me on my toes. Love you, Aunt Marjorie.

    • CarolC 29/05/2014 at 10:28 am - Reply

      Thanks Aunt Marjorie, life is too short not to enjoy it. There are so many people out there with a lot more to deal with then me. So I feel very lucky! Especially because of the special people I have in my life.
      Love you
      C xxxxxx

  2. Phyllis Banks 29/05/2014 at 12:28 am - Reply

    Carol, the pictures of your balance are incredible even though I can’t really understand them.
    It’s amazing what can be done without seeing you in person.
    Very clever photographer.

    • CarolC 29/05/2014 at 10:20 am - Reply

      That is why this is such an important project because most people don’t understand. The photo depicts what is going through my head when I lose my balance. Very swirly and feeling of things constantly moving by me. He is a very clever photographer!
      Love you
      Carol xxx

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